Welcome to a visitant blog from Joanne Drayson about her diagnosis with Lyme disease. She says her circumstances was “Mis diagnosed as ME/CFS, Fibromyalgia, Poly Myalgia Rheumatica significantly improved then treated for Lyme Disease. Perhaps greater degree of aptly described as Multi-Systemic Infectious Disease Syndrome – MSIDS.”
Please application the comments to tell your Lyme Disease chronicle and share any advice you may be favored with.
“I started suffering with arthritis in mainly my large joints especially my knees 6 years since. The symptoms varied and I remember sententious precept that every joint was affected excepting my elbows to one doctor. I was told it would be hormonal and to take the customary supplements cod liver oil or glucosamine ( I would certainly make acceptable buying shares in the companies producing these supplements) They had not at all noticeable affect.
All my symptoms deteriorated significantly from one side to the other a few weeks,4 years gone. Hips shoulders and knees being the overcome and I started with muscle weakness in upper warlike exploits and upper legs. I had exigency standing and walking across a latitude. I was unable to walk upstairs and my economize was making plans to convert to a downstairs bedroom. I had seen 5 doctors and 3 Rheumatologists and impose on steroids for Poly Myalgia Rheumatica diagnosis. I had been diagnosed by Fibromyalgia and ME/CFS.
I be favored with X rays and scans showing signs of osteoarthritis and Rheumatoid arthritis. I be delivered of been retired early from the Civil Service having napping my job not to mention my earning in posse. My illness seemed to progress through my material part not affecting the same joints left to just at the same time. I had bursitis in left haunch, right hip, left elbow. I had synovial thickening in both wrists. At that time I could not help and hold a magazine so lifting a kettle I could singly do if a third full and with two hands. Each joint in my hands fingers feet and toes were assumed. I had swallowing difficulties and many other symptoms.
None of this describes the unlimited and awful pain whenever I moved or the tiredness end inability to get quality sleep.
Two years past my GP gave me Amoxicilin notwithstanding a sinus/throat/chest infection. All my arthritis symptoms improved. The road ended the symptoms deteriorated I started a back course the symptoms improved.
The amending was more significant than when I had started catching steroids. This led my GP to think Lyme Disease. I laughed because we chouse not travel abroad but she declared they had had other cases in the surgery in the at daybreak stages of tick bite and Erythma Migrans unwary. She said but you have not had a rend. I said oh yes I own I had two on my ankles by rashes, March 05 this was confirmed without ceasing her computer when I had seen a locum physician. My worst symptoms were waking up pathetic rigid and having to painfully flex each joint in my body before struggling to procure to be up. The only other time I had practised this was in May 2003 for the time of a flu like illness like none other I had ever experienced. At that time I had a catch hold of and similar rash on my appropriate foot which lasted like the other rashes not far from four weeks. I had also consulted the surgery and it was dismissed while a virus. I walked our dog daily in the woods adjacent to our tavern where the deer roam, prime beat area. Thus started my very protracted search about Lyme Disease leading me end Lyme Disease Action to a doctor who specialises in this illness. He confirmed my GP’s suspicions. I not ever had a positive blood test moreover then they are antigen tests and there is much research that shows they are untrustworthy. In my case the year of steroids and frequent weeks antibiotics could have affected the results.
So through a clinical diagnosis and following ILADS International Lyme and Associated Disease Society guidelines I continued on antibiotics for two years. Both my doctors continued to manage me despite of Health Protection Agency advising facing long term antibiotics. I am after this nearly 100% recovered I have none pain or muscle weakness. I be possible to walk upstairs something I could not cheat for three and a half years. I be able to garden do house work and live a legitimate life. I still need to step myself and with only a scarcely any months to 60 will not be looking to return to work. Life is of the like kind a joy. Sadly there is abundant controversy about Lyme Disease and doctors in UK are strained that it is so rare. Well whither I live in Guildford I take been in contact with a dozen other people with it so perhaps not so rare as HPA would like us to give credit to.
I am in touch with pressingly 2000 other patients through a chat string Eurolyme most had been misdiagnosed with several other illnesses. Look at UK active goodness Lyme Disease Action if you deficiency to read more about this disorder. There are many MP’s pleasing an interest in the problems surrounding diagnosis and manipulation see above charity links into a novel meeting at the House of Commons.
Thank benevolence there are some thinking doctors round who have courageously treated me in countervail to opposition and I have made in the same state a miraculous recovery albeit rather a long one. One day there will subsist many more people who are helped by their chronic illnesses when IDSA starts catching note of what our courageous LLMD’s are doing following ILADS Guidelines.
ME/CFS, Fibromyalgia, Poly Myalgia Rheumatica, Arthritis, Bell’s Palsy, MS,MN, ALS, Parkinson’s, Alzheimer’s, Heart Block, Stroke, Psychiatric, of the stomach problems the list is endless. Not whole suffering from Lyme Borrelia but in what manner many are even properly assessed with regard to it.
An excellent video from an expert in ME/CFS and Lyme Disease can be found on my blog put in the ledger http://lookingatlyme.blogspot.co.uk/2012/05/samuel-shor-display-on-lyme.html
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Category: Pain management